Associate Professor Jane Desborough
Areas of expertise
- Health And Community Services 111708
- Primary Health Care 111717
- Nursing 1110
- Midwifery 111006
- Public Health And Health Services 1117
Research interests
- Patient, family, carer and clinicians' experiences and perspectives
- Consumer engagement and coproduction research
- Patient enablement
- Primary health care
- Quality measurement in health care
- Knowledge translation
Biography
Jane Desborough (DAppScNursing; GDipMid; MPH, PhD) is an Associate Professor at the National Centre for Epidemiology and Population Health, Australian National University. She is a mixed methods researcher, who works closely with patients, clinicians and policy makers to conduct research that is responsive to their needs and preferences, and targets quality and outcomes improvement.
Jane holds an ARC Discovery Early Career Researcher Award (DECRA) 2022 for which she is examining the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the OOP costs of chronic disease.
Jane leads the Health Experience Team for the ANU’s inaugural grand challenge project Our Health In Our Hands (OHIOH). This team is comprised of more than 20 researchers, more than half of whom are living with Multiple Sclerosis (MS) or Type 1 Diabetes(T1D). Its aim is to embed the experiences and perspectives of people living with MS and T1D into the project from inception to implementation.
Jane is also leading an Australian Department of Health funded project examining people with rare diseases' experiences from symptom onset to diagnosis, with the aim of developing resources for healthcare providers to increase awareness of rare diseases and improve diagnosis.
From March 2020 to November 2021 Jane worked on secondment to the Australian Government Department of Health as an Action Researcher with the COVID-19 Primary Care Response Group.
Jane is a registered nurse and midwife, and has worked clinically in a variety of settings for 25 years, including remote area nursing. Before moving to academia, Jane worked as a Senior Policy Officer at the ACT Health Directorate in the Office of the ACT Chief Nurse.
Researcher's projects
The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia
Characterising and measuring fatigue in progressive multiple sclerosis; a person centered approach
Ketowhistle: Highly accurate point-of-care home-use breath acetone sensor for diagnosing diabetic ketoacidosis.
Missed opportunities in clinical practice – Tools to enhance healthcare providers’ awareness and diagnosis of rare diseases in Australia
Leader, Health Experience Team - Our Health in Our Hands (OHIOH): Future Personalised Medical Technologies for Sustainable and Effective Healthcare
Action Researcher, COVID-19 Primary Care Response Group, Australian Government Department of Health (seconded March 2020 - November 2021)
Better care and better outcomes for youth experiencing self harm (complete).
The ACT Transition from Hospital to Home Survey: a prospective survey of orthopaedic patients (complete).
Implementation of The Patient Enablement and Satisfaction Model in the ACT Health cardiology clinics (complete).
Evaluation of a General Practice Capability Building and Quality Improvement Initiative (complete).
A retrospective case control study examining the relationship between patient experiences from hospitalisation to care in general practice, and unplanned 30-day readmission after hospitalisation for common medical and surgical conditions (complete).
Environmental Scan of Patient Experience Surveys (complete).
The ACT Patient Enablement and Satisfaction Study: a mixed methods study examining the relationship between general practice characteristics and nurse consultation characteristics on patient enablement and satisfaction (complete).
Available student projects
Preferences of people with chronic disease, and the trade-offs they are willing to make when deciding how to manage OOP health costs: a discrete choice experiement (Masters research project)
Current student projects
Ms Mingming Zhou, PhD candidate. Topic: Investigating the process of consumer engagement in chronic disease research, and developing resources to support collaboration between researchers, clinicians and people living with chronic disease (Primary supervisor and Chair of panel).
Mr Abofazl Amjadipour, PhD student. Topic: Investigating the Correlations of Inflammatory Biomarkers and Fatigue Scores in Multiple Sclerosis (Associate supervisor).
Mr Sunny Mannava, ANU Future Research Talent Award scholar. Topic: Rapid review of the international literature examining people with chronic conditions experiences of managing the out-of-pocket costs of health care and medicines.
Past student projects
2018 - 2022: Andini Yulina Pramono, PhD candidate. Topic: Challenges and Facilitators to Implementation of the Baby Friendly Hospital Initiative in Australia and the Ten Steps to Successful Breastfeeding in Indonesia: a mixed methods study (PhD awarded 2023)
2017 - 2020: Sharon James, PhD candidate. Topic: Lifestyle risk communication by nurses in primary care (PhD awarded 2021)
2019: Crystal Brunoro, Living in a time of Personalized medicine: a systematic scoping review of the experiences of people with Multiple Sclerosis (MPH Advanced awarded 2019)
2019: Yabo Yan, Implementation of the Patient Enablement and Satisfaction Model in a Renal Clinic: preliminary results of a pre and post study (Honours awarded 2019)
2019: Madhur Chhabra, The ACT Transition from Hospital to Home Orthopaedic Survey: a prospective survey of patients having total knee arthroplasty (MPH Advanced awarded 2019)
2018 Mingming Zhou, Barriers to pharmacist prescribing: a scoping review comparing the UK, New Zealand, Canadian and Australian experiences (MPH Advanced awarded 2018)
ANU Medical School student projects
2020: Fiona Lewis, The process of patient and public involvement in Type 1 Diabetes research with young people: a grounded theory study
2018: Sybil Yeung, The ACT Transition from Hospital to Home Survey: a prospective survey of patients following total hip limb arthroplasty
2018: Quoc Hung Nyugen, Evaluation of OrthoApp: a web portal designed to enable people having lower limb arthroplasty to manage their health pre- and –post-surgery
Publications
- Brew-Sam, N, Parkinson, A, Chhabra, M et al. 2023, 'Toward Diabetes Device Development That Is Mindful to the Needs of Young People Living With Type 1 Diabetes: A Data- and Theory-Driven Qualitative Study', JMIR Diabetes, vol. 8, pp. 1-19.
- Butler, D, Joshy, G, Douglas, K et al. 2023, 'Changes in general practice use and costs with COVID-19 and telehealth initiatives: analysis of Australian whole-population linked data', British Journal of General Practice, vol. 73, no. 730, pp. e364-e373.
- Bourke, S, Munira, S, Parkinson, A et al. 2023, 'Exploring the barriers and enablers of diabetes care in a remote Australian context: A qualitative study', PLOS ONE (Public Library of Science), vol. 18, no. 7.
- Brew-Sam, N, Desborough, J, Parkinson, A et al. 2022, 'A user preference analysis of commercial breath ketone sensors to inform the development of portable breath ketone sensors for diabetes management in young people', PLOS ONE (Public Library of Science), vol. 17, no. 7, pp. 1-19.
- Halcomb, E, Fernandez, R, Mursa, R et al. 2022, 'Evaluation of the Brief Coping Orientation to Problems Experienced scale and exploration of coping among primary health care nurses during COVID-19', Journal of Nursing Management, vol. 30.
- Chhabra, M, Perriman, D, Phillips, C et al. 2022, 'Understanding factors affecting 30-day unplanned readmissions for patients undergoing total knee arthroplasty (TKA): the ACT Transition from Hospital to Home Orthopaedics Survey', BMJ Open, vol. 12, no. 4, pp. 1 - 8.
- Sturgiss, E, Dut, G, Matenge, S et al. 2022, 'COVID-19 and access to sexual and reproductive healthcare for young people: An overview of the international literature and policy', Australian Journal of General Practice, vol. 51, no. 4, pp. 271-277.
- Parkinson, A, Brunoro, C, Leayr, J et al. 2022, 'Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis', Health Expectations, vol. 25, no. 3, pp. 803-822.
- Sturgiss, E, Desborough, J, Hall, S et al. 2022, 'Digital health to support primary care provision during a global pandemic', Australian Health Review, vol. 46, no. 3, pp. 269-272.
- Yeung, S, Perriman, D, Chhabra, R et al. 2022, 'ACT Transition from Hospital to Home Orthopaedic Survey: a cross-sectional survey of unplanned 30-day readmissions for patients having total hip arthroplasty', BMJ Open, vol. 12, no. 5.
- Brew-Sam, N, Parkinson, A, Lueck, C et al. 2022, 'The current understanding of precision medicine and personalised medicine in selected research disciplines: study protocol of a systematic concept analysis', BMJ Open, vol. 12, no. 9.
- Pramono, A, Smith, J, Bourke, S et al. 2022, 'How midwives and nurses experience implementing ten steps to successful breastfeeding: a qualitative case study in an Indonesian maternity care facility', International Breastfeeding Journal, vol. 17, no. 1, pp. 1-11.
- Hossain, M, Daskalaki, E, Bruestle, A et al. 2022, 'The role of machine learning in developing non-magnetic resonance imaging based biomarkers for multiple sclerosis: a systematic review', BMC Medical Informatics and Decision Making, vol. 22, no. 1.
- Desborough, J, Blashki, G, Hall, S et al. 2022, 'Rapid deployment of support for a mental health crisis: 10 priorities framing Australia's COVID-19 pandemic response', Australian Journal of Primary Health, vol. 28, no. 4, pp. 271-282.
- Davis, S, Roberts, L, Desborough, J et al. 2022, 'Integrating General Practice Into the Australian COVID-19 Response: A Description of the General Practitioner Respiratory Clinic Program in Australia', Annals of Family Medicine, vol. 20 , no. 3, pp. 273-276.
- Parkinson, A, Matenge, S, Desborough, J et al. 2022, 'The impact of COVID-19 on chronic disease management in primary care: lessons for Australia from the international experience', Medical Journal of Australia, vol. 216, no. 9, pp. 445-448.
- Hall, S, Desborough, J, Sturgiss, E et al. 2022, 'Older people, the digital divide and use of telehealth during the COVID-19 pandemic', Australian Journal of General Practice, vol. 51, no. 9, pp. 721-724.
- Desborough, J, Wright, M, Parkinson, A et al. 2022, 'What strategies have been effective in optimising COVID-19 vaccine uptake in Australia and internationally?', Australian Journal of General Practice, vol. 51, no. 9, pp. 725-730.
- Pramono, A, Smith, J, Bourke, S et al. 2022, '"We All Believe in Breastfeeding": Australian Midwives' Experience of Implementing the Baby Friendly Hospital Initiative', Journal of Human Lactation, vol. 38, no. 4, pp. 780-791.
- Namsrai, T, Parkinson, A, Chalmers, A et al. 2022, 'Diagnostic delay of myositis: an integrated systematic review', Orphanet Journal of Rare Diseases, vol. 17, no. 1.
- Wang, S, Parkinson, A, Butler, D et al. 2022, 'Real price of health-experiences of out-of-pocket costs in Australia: protocol for a systematic review', BMJ Open, vol. 12, no. 12, pp. e065932.
- Matenge, S, Sturgiss, E, Desborough, J et al. 2022, 'Ensuring the continuation of routine primary care during the COVID-19 pandemic: a review of the international literature', Family Practice, vol. 39, no. 4, pp. 747-761.
- Halcomb, E, Fernandez, R, Mursa, R et al. 2022, 'Evaluation of the Brief Coping Orientation to Problems Experienced scale and exploration of coping among primary health care nurses during COVID-19 ', Journal of Nursing Management, vol. 30, no. 7, pp. 2597-2608.
- Desborough, J, Hall, S, Sturgiss , E et al. 2022, 'What has the COVID-19 pandemic taught us about the use of virtual consultations in primary care?', Australian Journal of General Practice, vol. 51, no. 3, pp. 179-183.
- Halcomb, E, Fernandez, R, Mursa, R et al. 2022, 'Mental health, safety and support during COVID-19: A cross-sectional study of primary health care nurses', Journal of Nursing Management, vol. 30, no. 2, pp. 393-402.
- Hettiarachchi, C, Daskalaki, E, Desborough, J et al. 2022, 'Integrating Multiple Inputs Into an Artificial Pancreas System: Narrative Literature Review', JMIR Diabetes, vol. 7, no. 1, pp. 1-18.
- Pramono, A, Desborough, J, Smith, J et al. 2021, 'The social value of implementing the ten steps to successful breastfeeding in an Indonesian hospital: A case study', Yale Journal of Biology and Medicine, vol. 94, no. 3, pp. 429-458.
- Suominen, H, Manocha, M, Desborough, J et al. 2021, 'Finger Tapping Measures for Parkinson’s Disease: Preliminary Evaluation of an Android Application for Data Collection in Australia', 15th International Congress on Nursing Informatics, ed. Michelle Honey, Charlene Ronquillo, Ting-Ting Lee, Lucy Westbrooke, IOS Press Ebooks, Netherlands, pp. 475-480.
- Matenge, S, Sturgiss , E, Desborough, J et al. 2021, 'Ensuring the continuation of routine primary care during the COVID-19 pandemic: a review of the international literature', Family Practice, vol. 2021, no. 4, pp. 1-15.
- Hall, S, Matenge, S, Desborough, J et al. 2021, 'Protecting Nursing Homes and Long-Term Care Facilities From COVID-19: A Rapid Review of International Evidence', Journal of the American Medical Directors Association, vol. 22, pp. 1969-1988.
- Butler, D, Jorm, L, Larkins, S et al. 2021, 'Examining area-level variation in service organisation and delivery across the breadth of primary healthcare. Usefulness of measures constructed from routine data', PLOS ONE (Public Library of Science), vol. 16, no. 12 December, pp. 1-15.
- James, S, Ashley, C, Williams, A et al. 2021, 'Experiences of Australian primary healthcare nurses in using telehealth during COVID-19: a qualitative study', BMJ Open, vol. 11, no. 8, pp. 1-7.
- Pramono, A, Smith, J, Desborough, J et al. 2021, 'Social value of maintaining baby-friendly hospital initiative accreditation in Australia: case study', International Journal for Equity in Health, vol. 20, no. 1, pp. 1-12.
- Brew-Sam, N, Chhabra, M, Parkinson, A et al. 2021, 'Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis', JMIR Diabetes, vol. 6, no. 1, pp. 1-14.
- Munindradasa, A, Blashki, G, Hall, S et al. 2021, 'General practitioner management of mental health during the COVID-19 pandemic', Australian Journal of General Practice, vol. 50, no. 7, pp. 472-477.
- James, S, Halcomb, E, Desborough, J et al. 2021, 'Barriers and facilitators to lifestyle risk communication by Australian general practice nurses', Australian Journal of Primary Health, vol. 27, pp. 30-35.
- Parkinson, A, Drew, J, Hall, S et al. 2021, ''They're getting a taste of our world': A qualitative study of people with multiple sclerosis' experiences of accessing health care during the COVID-19 pandemic in the Australian Capital Territory', Health Expectations, vol. 24, no. 5, pp. 1607-1617.
- Desborough, J, Hall, S, Davis, S, Kidd, M. 2021, 'Reflecting on Australia's five principles for pandemic response in primary care through the lens of early international experiences of Covid 19', Australian Journal of General Practice.
- Desborough, J, Hall, S, Phillips, C, Wright, M, Maddox, R, David S, Kidd M. 2021, 'Lessons for the global primary care response to COVID-19: a rapid review of evidence from past epidemics', Family Practice, pp. 1-15.
- Hall, S, Desborough, J, de Toca , L et al. 2021, '"A decade's worth of work in a matter of days": The journey to telehealth for the whole population in Australia', International Journal of Medical Informatics, vol. 151, pp. 1-10.
- Henschke, A, Desborough, J, Parkinson, A et al. 2021, 'Personalizing Medicine and Technologies to Address the Experiences and Needs of People with Multiple Sclerosis', Journal of Personalized Medicine, vol. 11, no. 8, pp. 1-9.
- Desborough, J, Brunoro, C, Parkinson, A et al. 2020, 'It struck at the heart of who I thought I was: A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis', Health Expectations, vol. 23, no. 5, pp. 1007-1027.
- Desborough, J, Hall, S, Rankin, D et al. 2020, 'The importance of consistent advice during a pandemic An analysis of Australian advice regarding personal protective equipment in healthcare settings during COVID-19', Australian Journal of General Practice, vol. 49, no. 6, pp. 369-372.
- Hall, S, Desborough, J, Kelaher, C et al. 2020, 'COVID-19 highlights risks of healthcare and social care workers attending work while ill', Australian Journal of General Practice, vol. 49, pp. 1-2.
- Desborough, J, Hall, S, de Toca , L et al. 2020, 'Australia's national COVID-19 primary care response', Medical Journal of Australia, vol. 213, no. 3, pp. 104-106.e1.
- James, S, McInnes, S, Halcomb, E et al 2020, 'Lifestyle risk factor communication by nurses in general practice: Understanding the interactional elements', Journal of Advanced Nursing, vol. 76, no. 11, pp. 234-242.
- James, S, Desborough, J, McInnes, S et al 2020, 'Nonverbal communication between registered nurses and patients during chronic disease management consultations: Observations from general practice', Journal of Clinical Nursing, vol. 29, no. 13-14, pp. 2378-2387.
- James, S, McInnes, S, Halcomb, E et al. 2020, 'General practice nurses’ communication strategies for lifestyle risk reduction: A content analysis', Journal of Advanced Nursing, vol. 76, no. 11, pp. 1-10.
- Pramono, A, Desborough, J & Smith, J 2019, 'The Ten Steps to Successful Breastfeeding Policy Review', Breastfeeding Review, vol. 27, no. 3, pp. 15-28.
- James, S, Halcomb, E, Desborough, J et al. 2019, 'Lifestyle risk communication by general practice nurses: An integrative literature review', Collegian, vol. 26, no. 1, pp. 183-193.
- Zhou, M, Desborough, J, Parkinson, A et al 2019, 'Barriers to pharmacist prescribing: a scoping review comparing the UK, New Zealand, Canadian and Australian experiences', International Journal of Pharmacy Practice, vol. 27, no. 6, pp. 479-489.
- James, S, Desborough, J, McInnes, S et al 2019, 'Strategies for using non-participatory video research methods in general practice', Nurse Researcher, vol. 27, no. 2.
- Desborough, J, Phillips, C, Mills, J et al. 2017, 'Developing a positive patient experience with nurses in general practice: an integrated model of patient satisfaction and enablement', Journal of Advanced Nursing, vol. 74, no. 3, pp. 564-578.
- Desborough, J, Parkinson, A, Korda, R et al 2018, 'The practical use of the Patient Enablement and Satisfaction Model in nurse-led outpatient cardiac clinics', Collegian, vol. 26, pp. 415-421.
- James, S, Halcomb, E, Desborough, J et al 2018, 'General practice nurse perceptions of their communication on lifestyle risk', Australian Nursing and Midwifery Journal, vol. 25, no. 8, pp. 1pp.
- Du, W, Luther, M, Desborough, J et al 2018, 'Variation in and factors associated with psychosocial interventions for hospitalised self-harm patients in New South Wales, Australia', General Hospital Psychiatry, vol. 54, pp. 1-4pp.
- Desborough, J, Banfield, M, Phillips, C et al 2017, 'The process of patient enablement in general practice nurse consultations: a grounded theory study', Journal of Advanced Nursing, vol. 73, no. 5, pp. 1085-1096pp.
- Desborough, J., Bagheri, N., Banfield, M., Phillips, C., Mills, J., Korda, R., 2016, 'The impact of general practice nursing care on patient satisfaction and enablement in Australia: a mixed methods study.', International Journal of Nursing Studies, vol. 64, pp. 108-119.
- Gardner, K, Parkinson, A, Banfield, M et al 2015, 'Usability of patient experience surveys in Australian primary health care: a scoping review', Australian Journal of Primary Health, 22 (2), 93 - 99.
- Desborough, J, Phillips, C, Banfield, M et al 2015, 'Impact of nursing care in Australian general practice on the quality of care: A pilot of the Patient Enablement and Satisfaction Survey (PESS)', Collegian, vol. 22, no. 2, pp. 207-214.
- Gardner, K, Parkinson, A, Banfield, M et al. 2014, Environmental scan of patient experience surveys used in primary health care.
- Desborough, J, Banfield, M & Parker, R 2013, 'A tool to evaluate patients' experience of nursing care in Australian general practice: Development of the Patient Enablement and Satisfaction Survey (PESS)', Australian Journal of Primary Health, 20 (2), 209-15.
- Desborough, J, Parker, R & Forrest, L 2013, 'Nurse satisfaction with working in a nurse led primary care walk-in centre: an Australian experience', Australian Journal of Advanced Nursing, vol. 31, no. 1, pp. 11-19.
- Desborough, J, Parker, R & Forrest, L 2013, 'Development and implementation of a nurse-led walk-in centre: evidence lost in translation?', Journal of Health Services Research and Policy, vol. 18, no. 3, pp. 174-178.
- Desborough, J 2012, 'How nurse practitioners implement their roles', Australian Health Review, vol. 36, no. 1, pp. 22-26.
- Parker, R, Desborough, J & Forrest, L 2012, 'Stakeholder perceptions of a nurse led walk-in centre', BMC Health Services Research, vol. 12, no. 1, pp. 1-7.
- Crow, J., Walker, L., Desborough, J., 2012, Nurse clinics in Australian general practice: planning, implementation and evaluation, available at: http://apna.asn.au/lib/pdf/Resources/AMLAresources/20121003_rsc_FINAL-Nurse-Clinics-in-Australian-General-Practice.pdf
- Desborough, J, Forrest, L & Parker, R 2012, 'Nurse-led primary healthcare walk-in centres: an integrative literature review', Journal of Advanced Nursing, vol 68, no. 2, pp. 248-263.
- Parker RM, Forrest LE, Desborough J, McRae I, Boyland T. (2011) Independent evaluation of the nurse-led ACT Health Walk-in Centre. Submitted to ACT Health 30th June 2011. Canberra, Australian Primary Health Care Research Institute.
Projects and Grants
Grants information is drawn from ARIES. To add or update Projects or Grants information please contact your College Research Office.
- Characterising and measuring fatigue in progressive multiple sclerosis; a person centered approach (Secondary Investigator)
- Ketowhistle: Highly accurate point-of-care home-use breath acetone sensor for diagnosing diabetic ketoacidosis. (Secondary Investigator)
- The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia (Primary Investigator)
- Missed opportunities in clinical practice: Tools to enhance clinician awareness and diagnosis of rare diseases in Australia (Primary Investigator)
- Optimising primary health care in Australia: multi-method whole-of-population investigation of the impact of telehealth on uptake and quality of care (Secondary Investigator)
- Better care and better outcomes for youth experiencing self-harm (Secondary Investigator)
- Development of a toolkit for collaborative MS research (Primary Investigator)
- Evaluation of a General Practice Capability Building and Quality Improvement Initiative (Secondary Investigator)
- Environment Scan for Patient Experience Surveys (Secondary Investigator)
