Dr Jane Desborough

Diploma Applied Science (Nursing); Graduate Diploma Midwifery; Masters in Public Health; PhD Population Health
ARC Discovery Early Career Research Award (DECRA) Fellow 2022, Senior Research Fellow and Leader, Health Experience Team, Department of Health Services Research and Policy, Research School of Population Health
College of Health & Medicine
T: 02 6125 6544

Areas of expertise

  • Health And Community Services 111708
  • Primary Health Care 111717
  • Nursing 1110
  • Midwifery 111006
  • Public Health And Health Services 1117

Research interests

  • Patient, family, carer and clinicians' experiences and perspectives
  • Consumer engagement and coproduction research
  • Patient enablement
  • Primary health care
  • Quality measurement in health care
  • Knowledge translation


Jane Desborough (DAppScNursing; GDipMid; MPH, PhD) is a Senior Research Fellow at the National Centre for Epidemiology and Population Health, Australian National University. Jane is a mixed methods researcher, who works closely with patients, clinicians and policy makers to conduct research that is not only responsive to their needs and preferences, but aims to target quality and outcomes improvement.

Jane leads the Health Experience Team for the ANU’s inaugural grand challenge project Our Health In Our Hands (OHIOH). This team is comprised of more than 20 researchers, more than half of whom are living with Multiple Sclerosis (MS) or Type 1 Diabetes(T1D). Its aim is to embed the experiences and perspectives of people living with MS and T1D into the project from inception to implementation.

Jane is leading an Australian Department of Health funded project examining people with rare diseases' exeriences from symptom onset to diagnosis, with the aim of developing resources for healthcare providers to increase awareness of rare diseases and improve diagnosis. Most recently, Jane was awarded an ARC Discovery Early Career Researcher Award (DECRA) 2022 for which she will examine people's experiences of managing the out-of-pocket costs of healthcare and medicines in Australia.

From March 2020 to November 2021 Jane worked on secondment to the Australian Government Department of Health as an Action Researcher with the COVID-19 Primary Care Response Group. She is continuing wher work with this team in parallel with her ANU research.

Jane is a registered nurse and midwife, and has worked clinically in a variety of settings for 25 years, including remote area nursing. Before moving to academia, Jane worked as a Senior Policy Officer at the ACT Health Directorate in the Office of the ACT Chief Nurse.

Researcher's projects

The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia

Missed opportunities in clinical practice – Tools to enhance healthcare providers’ awareness and diagnosis of rare diseases in Australia

Leader, Health Experience Team - Our Health in Our Hands (OHIOH): Future Personalised Medical Technologies for Sustainable and Effective Healthcare

Action Researcher, COVID-19 Primary Care Response Group, Australian Government Department of Health (seconded March 2020 - November 2021)

Better care and better outcomes for youth experiencing self harm (complete).

The ACT Transition from Hospital to Home Survey: a prospective survey of orthopaedic patients (complete).

Implementation of The Patient Enablement and Satisfaction Model in the ACT Health cardiology clinics (complete).

Evaluation of a General Practice Capability Building and Quality Improvement Initiative (complete).

A retrospective case control study examining the relationship between patient experiences from hospitalisation to care in general practice, and unplanned 30-day readmission after hospitalisation for common medical and surgical conditions (complete).

Environmental Scan of Patient Experience Surveys (complete).

The ACT Patient Enablement and Satisfaction Study: a mixed methods study examining the relationship between general practice characteristics and nurse consultation characteristics on patient enablement and satisfaction (complete).

Available student projects

Exploring and understanding the process of consumer engagement in chronic disease research, and developing resources to support collaboration between researchers and people living with chronic disease - PhD or Masters

Systematic review of consumer engagement and/or coproduction in research about people with chronic diseases. This review will have a focus on examining tools and resources developed to support consumer and clinician engagement in research - Honours or Masters

Systematic review examining people with chronic diseases' experiences of managing the out-of-pocket costs of healthcare and medicines - Honours or Masters

Current student projects

Andini Yulina Pramono, PhD candidate. Topic: Cost and Benefit Analysis on Implementation of Breastfeeding Policy in Hospitals

Past student projects

2017 - 2020: Sharon James, PhD candidate. Topic: Lifestyle risk communication by nurses in primary care (PhD awarded 2021)

2019: Yabo Yan, Implementation of the Patient Enablement and Satisfaction Model in a Renal Clinic: preliminary results of a pre and post study (Honours awarded 2019)

2019: Madhur Chhabra, The ACT Transition from Hospital to Home Orthopaedic Survey: a prospective survey of patients having total knee arthroplasty (MPH Advanced awarded 2019)

2018 Mingming Zhou, Barriers to pharmacist prescribing: a scoping review comparing the UK, New Zealand, Canadian and Australian experiences (MPH Advanced awarded 2018)


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Updated:  27 May 2022 / Responsible Officer:  Director (Research Services Division) / Page Contact:  Researchers