Associate Professor Jane Desborough

Diploma Applied Science (Nursing); Graduate Diploma Midwifery; Masters in Public Health; PhD Population Health
ARC Discovery Early Career Research Award (DECRA) Fellow 2022; Leader, Health Experience Team, Department of Health Services Research and Policy, National Centre for Epidemiology and Population Health
ANU College of Health and Medicine
T: 02 6125 6544

Areas of expertise

  • Health And Community Services 111708
  • Primary Health Care 111717
  • Nursing 1110
  • Midwifery 111006
  • Public Health And Health Services 1117

Research interests

  • Patient, family, carer and clinicians' experiences and perspectives
  • Consumer engagement and coproduction research
  • Patient enablement
  • Primary health care
  • Quality measurement in health care
  • Knowledge translation


Jane Desborough (DAppScNursing; GDipMid; MPH, PhD) is an Associate Professor at the National Centre for Epidemiology and Population Health, Australian National University. She is a mixed methods researcher, who works closely with patients, clinicians and policy makers to conduct research that is responsive to their needs and preferences, and targets quality and outcomes improvement.

Jane holds an ARC Discovery Early Career Researcher Award (DECRA) 2022 for which she is examining the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the OOP costs of chronic disease.

Jane leads the Health Experience Team for the ANU’s inaugural grand challenge project Our Health In Our Hands (OHIOH). This team is comprised of more than 20 researchers, more than half of whom are living with Multiple Sclerosis (MS) or Type 1 Diabetes(T1D). Its aim is to embed the experiences and perspectives of people living with MS and T1D into the project from inception to implementation.

Jane is also leading an Australian Department of Health funded project examining people with rare diseases' experiences from symptom onset to diagnosis, with the aim of developing resources for healthcare providers to increase awareness of rare diseases and improve diagnosis.

From March 2020 to November 2021 Jane worked on secondment to the Australian Government Department of Health as an Action Researcher with the COVID-19 Primary Care Response Group.

Jane is a registered nurse and midwife, and has worked clinically in a variety of settings for 25 years, including remote area nursing. Before moving to academia, Jane worked as a Senior Policy Officer at the ACT Health Directorate in the Office of the ACT Chief Nurse.

Researcher's projects

The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia

Characterising and measuring fatigue in progressive multiple sclerosis; a person centered approach

Ketowhistle: Highly accurate point-of-care home-use breath acetone sensor for diagnosing diabetic ketoacidosis.

Missed opportunities in clinical practice – Tools to enhance healthcare providers’ awareness and diagnosis of rare diseases in Australia

Leader, Health Experience Team - Our Health in Our Hands (OHIOH): Future Personalised Medical Technologies for Sustainable and Effective Healthcare

Action Researcher, COVID-19 Primary Care Response Group, Australian Government Department of Health (seconded March 2020 - November 2021)

Better care and better outcomes for youth experiencing self harm (complete).

The ACT Transition from Hospital to Home Survey: a prospective survey of orthopaedic patients (complete).

Implementation of The Patient Enablement and Satisfaction Model in the ACT Health cardiology clinics (complete).

Evaluation of a General Practice Capability Building and Quality Improvement Initiative (complete).

A retrospective case control study examining the relationship between patient experiences from hospitalisation to care in general practice, and unplanned 30-day readmission after hospitalisation for common medical and surgical conditions (complete).

Environmental Scan of Patient Experience Surveys (complete).

The ACT Patient Enablement and Satisfaction Study: a mixed methods study examining the relationship between general practice characteristics and nurse consultation characteristics on patient enablement and satisfaction (complete).

Available student projects

Preferences of people with chronic disease, and the trade-offs they are willing to make when deciding how to manage OOP health costs: a discrete choice experiement (Masters research project)

Current student projects

Ms Mingming Zhou, PhD candidate. Topic: Investigating the process of consumer engagement in chronic disease research, and developing resources to support collaboration between researchers, clinicians and people living with chronic disease (Primary supervisor and Chair of panel).

Mr Abofazl Amjadipour, PhD student. Topic: Investigating the Correlations of Inflammatory Biomarkers and Fatigue Scores in Multiple Sclerosis (Associate supervisor).

Mr Sunny Mannava, ANU Future Research Talent Award scholar. Topic: Rapid review of the international literature examining people with chronic conditions experiences of managing the out-of-pocket costs of health care and medicines.

Past student projects

2018 - 2022: Andini Yulina Pramono, PhD candidate. Topic: Challenges and Facilitators to Implementation of the Baby Friendly Hospital Initiative in Australia and the Ten Steps to Successful Breastfeeding in Indonesia: a mixed methods study (PhD awarded 2023)

2017 - 2020: Sharon James, PhD candidate. Topic: Lifestyle risk communication by nurses in primary care (PhD awarded 2021)

2019: Crystal Brunoro, Living in a time of Personalized medicine: a systematic scoping review of the experiences of people with Multiple Sclerosis (MPH Advanced awarded 2019)

2019: Yabo Yan, Implementation of the Patient Enablement and Satisfaction Model in a Renal Clinic: preliminary results of a pre and post study (Honours awarded 2019)

2019: Madhur Chhabra, The ACT Transition from Hospital to Home Orthopaedic Survey: a prospective survey of patients having total knee arthroplasty (MPH Advanced awarded 2019)

2018 Mingming Zhou, Barriers to pharmacist prescribing: a scoping review comparing the UK, New Zealand, Canadian and Australian experiences (MPH Advanced awarded 2018)

ANU Medical School student projects

2020: Fiona Lewis, The process of patient and public involvement in Type 1 Diabetes research with young people: a grounded theory study

2018: Sybil Yeung, The ACT Transition from Hospital to Home Survey: a prospective survey of patients following total hip limb arthroplasty

2018: Quoc Hung Nyugen, Evaluation of OrthoApp: a web portal designed to enable people having lower limb arthroplasty to manage their health pre- and –post-surgery



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Updated:  25 May 2024 / Responsible Officer:  Director (Research Services Division) / Page Contact:  Researchers